Honor’s Thesis Project Focusing on Complex Regional Pain Syndrome (CRPS)

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hopeoverpain

by Samantha M. Adcock

Faith Strength Courage Hope - CRPS RSD
Faith Strength Courage Hope – CRPS RSD

Caroline Graham, a senior at the University of New Mexico, will be receiving her BA in Theatre in the spring of 2015. Her father has been living with Complex Regional Pain Syndrome (CRPS) formerly known as Reflex Sympathetic Dystrophy (RSD) for 15 years.

She has chosen to use CRPS/RSD as the focal point of her Honor’s Thesis Project. She’s sent a letter of introduction that provides a brief outline of the project as well as her contact information.

I would highly encourage everyone with CRPS/RSD to participate in this project. Caroline guarantees anonymity & assures your confidentiality.  When Caroline graduated from High School four years ago she wrote a research paper as her Exit Project and interviewed many of the members of several CRPS/RSD support groups and as promised maintained their confidentiality.

Please share information about this worthwhile project with others who have this condition & encourage them to participate as well.

 

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18 responses to “Honor’s Thesis Project Focusing on Complex Regional Pain Syndrome (CRPS)”

  1. Sam Miles Avatar
    Sam Miles

    I’m Sam(antha), currently a sophomore in high school and RSD has turned my life upside down.. I’d be more than happy to share information and I give permission for you to share my name, it doesn’t bother me.

    Liked by 1 person

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    1. hopeoverpain Avatar
      hopeoverpain

      Thank you Sam, I will forward your information.

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  2. Karen Del Muro Avatar
    Karen Del Muro

    28-year survivor happy to help in any way. I hate my e-mail, if possible PM me.
    I cannot express how much I wish my 28 years of Hell could somehow benefit someone else.

    Liked by 1 person

    Reply
  3. Beth Seickel Avatar
    Beth Seickel

    Have been dealing with RSD for past almost 8 yrs. As a health professional I didn’t know what RSD was, but boy do I get it now….Traumatic is not a strong enough word. What ever I can do to assist I am more than willing

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  4. Kristy Marko Avatar
    Kristy Marko

    I have quite a story surrounding my diagnosis of RSD…… I was first diagnosed back in 2001, and it’s still spreading as I’m typing this.

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  5. jackie schilling Avatar
    jackie schilling

    Was originally injured at work in 2007 but was not diagnosed til a year later .
    with this horrible disease
    Completely limits the use of my right arm and shoulder beyond belief. I had no idea what rsd was either. Having a handicapped son at home doesn’t help but I do what I can for him and have a wonderful husband that helps when he can. More than happy to help if I can.

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  6. Robert Dinkelacker Avatar
    Robert Dinkelacker

    I’ve had RSD/CRPS also for 15 years! Any way I can help I will! It’s a great thing you are doing, for youself, and your Dad

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  7. Diane Termonen Avatar
    Diane Termonen

    First episode of CRPS in 1998 triggered by a broken fingertip. After 8 months and therapy acheived remission. Flare-up in 2005 brought on by hand surgery… then on to Knee surgeries and knee replacement s starting in 2009, etc. leading to spread to both legs and arms and shoulders. Just let me know what I can do to assist you.

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  8. Shari Lehman Avatar
    Shari Lehman

    I have been dealing with this beast for over 22 yrs. I am always pleased when people take the time to bring awareness to CRPS. If I can be of any help, I’m in!

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  9. Mark Shipway Avatar
    Mark Shipway

    I have suffered with this monster for 24 years after a fall at work ! Please feel free to contact me for anything you need !

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  10. Chris Avatar
    Chris

    I got CRPS/RSD after an incident where a police K9 bit into and severed Achilles tendon during a sleepwalking episode after taking the prescription sleep aid, Ambien. It got horribly infected with Staph and after 3 months in the hospital on PICC line fed antibiotics and 3 surgeries I was released and wondered if I’d ever walk again. After 6 months of aqua therapy a miracle happened, I was not only able to walk again but I could run. Now I participate in charity 5k’s all over CT to raise awareness for CRPS/RSD.

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  11. Donna Kucher Avatar
    Donna Kucher

    I have had RSD/CRPS since 2008 after falling at work and having minor wrist surgery. I too, did not know CRPS/RSD existed, well i do now. Any info you need, you can PM or email me.

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  12. maree power Avatar
    maree power

    Hi, i have had CRPSsince Dec 2008. I would have no problem in helping in any way i can. So please don’t hesitate to contact me.

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  13. Dawn M Avatar
    Dawn M

    I was diagnosed with RSD/CRPS in November 2011. It started in my right wrist after I fractured it in a fall training for the NYC Marathon. It spread to the rest of my body after a nerve block injection. I also have an Uncle who has had RSD for almost 20 years, and lost his surgeon career because it is in his hand. I was interviewed once by a surgical resident at Temple University who was researching a possible genetic link. I would be more than happy to share my experience.

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  14. A. Rose Ralls Avatar
    A. Rose Ralls

    I battled with cancer in 2001.It was a rough road but I survived. In 2008 I was diagnosed with RSD/CRPS.It is slowly taking over my body. The weather is a big factor and if I try and walk any distance. It is now affected my heart, I have an irregular heart beat, it is in my bladder, I have an over active bladder, I have renal neuropathy, It is in my hands, feet, legs, arm, neck. It is a difficult disease to live with but my family and friends are my rock and help keep me going. I take 18 pills a day and I am only 44 years old.I am on Social Security Disability so my income is very low. I do not have good insurance so I cannot take care of myself properly. Not enough doctors know how to handle this. We need to make this disease known to all so maybe we can find help. Thank you for doing this. You can use me in your paper. Good luck on your project I’m sure you will ace it!

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  15. mbtess Avatar
    mbtess

    I have a very unique story about how I acquired this insidious disease, just email me if you would like to hear. Good luck with your project

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  16. marianne Avatar
    marianne

    I’ll be happy to share my story. I injuried my knee from a fall in 1986 diagnosed with rsd in 1991 numerous surgeries and spinal infection.had a SCS. Implanted in 2008 and have been pain free and pain killer. Free. The medical field has come a very long way. Don’t give up and more important find the doctors who won’t give up. Looking for a treatment that works for you. God bless you all.

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  17. Kevin Graham, D.C. Avatar
    Kevin Graham, D.C.

    My name is Kevin Graham, I am the father of Caroline, the wonderful young woman (a dad’s prerogative to brag a bit) who is doing this project. On February 16th of 2015, it will be 16 years since I developed RSD/CRPS after a brain injury received during a high-speed rear-end collision (60+mph)… I lost my capacity to work as a Doctor of Chiropractic, because the brain injury resulted in RSD/CRPS starting a few days after the injury, in my hands, my feet, and the left half of my face and head. I’ve made a lot of progress since then, but like most of us it has been a very difficult and painful journey.

    Both of my daughters, but especially Caroline, spent a great deal of time with me as I navigated the maze of doctors, therapies, traditional and non-traditional treatments and adverse drug reactions; then she and the rest of my family bore witness as I experienced the inevitable emotional erosion, that so many of us go through. For the time she had to spend going places she did not want to go and having to see me suffer thru those treatments (she REALLY hates needles), and all of the miles of driving, I am forever sorry, and amazed that she didn’t stay as far away from RSD as she could … but like I said, she’s an amazing person.

    I am commenting here, first to give you some kind of understanding of who Caroline is and her motivation for and dedication to doing this project; and second, to thank you all for your kind words and your generosity in offering your stories and assistance to my daughter, Caroline. As she hones her skills as a writer, I believe she will make a significant contribution to the world of theater and to many groups of people, like RSD sufferers, who are marginalized and practically invisible to the rest of the world. Again, I thank you.

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