Honor’s Thesis Project Focusing on CRPS/RSD – Introduction Letter

Hello,

My name is Caroline Graham, and I am a senior at the University of New Mexico, receiving my BA in Theatre in the spring. I am looking for individuals to interview for my honors thesis, for which I have chosen to focus on RSD/CRPS.

Complex Regional Pain Syndrome (CRPS) / Reflex Sympathetic Dystrophy (RSD)
Complex Regional Pain Syndrome (CRPS) / Reflex Sympathetic Dystrophy (RSD)

I do not suffer from RSD, but my father has been living with it for fifteen years. I may have interviewed some of you four years ago, when I wrote a research paper on the topic for my high school exit project and my dad helped me contact a few Facebook groups. For my thesis, I am expanding upon my research, looking into new developments, and—with your willing participation—engaging in a deeper conversation with regard to chronic pain, its effects, and its implications.

The research paper is a large part of the process, but my ultimate goal is to create a performance piece to inform the general public about chronic pain conditions. Pain is an extremely personal experience that can be difficult to put into words; I know I cannot understand what this particular pain feels like, and many people never will. That is why I am hoping to utilize lecture aspects, movement pieces, art installations, and above all, your interview responses in order to explain what so many people go through on a daily basis, and what is often so difficult to recognize at a glance.

I am still in the process of formulating questions, and they may alter between interviews; these can be conducted in person, via Skype, or via Facebook message/email; if I gather enough material, I may include a multimedia aspect with segments of recorded interviews. Text-based conversations would be reproduced by a small core of actors that are active in the Albuquerque theatre community and that I trust deeply. Everything recorded or reproduced would only be done so with written consent; if we reach the end of the interview and you decide you don’t want your words to be released, the conversation will remain between us.

I will be engaging in these interviews through January, so there is no rush to get back to me. I am reachable through Facebook and via e-mail. if you have questions or concerns. I am looking forward to developing this project, and I hope to speak with many of you soon.

Thank you,

Caroline

10 responses to “Honor’s Thesis Project Focusing on CRPS/RSD – Introduction Letter”

  1. […] Honor’s Thesis Project Focusing on CRPS/RSD – Introduction Letter […]

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  2. Feel free to contact me via Facebook. Linda Stanton Mankato, MN.

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  3. I’d be happy to help in your research. Jayne Green, liverpool United Kingdom

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  4. Judi pfendler Dec.18 5:31 am

    Hi I have had RSD since 2010 it has now to date spread to over 80% of my body. It has caused vocal cord dysfunction which was causing breathing problems so they had to put in a trak so I can breath, that has happened in the last month. I have been having a hard time finding a Dr who really understands this disease. I would love to help with your project. please feel free to email me anytime. I think it’s a great thing you’re doing.

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    1. Hi Judi, I’m forwarding your contact information to Caroline.

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  5. O.k. for crps study. Just let me know.

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    1. Hi Margaret, you will need to contact the folks who are hosting the trial directly to see if they have a place for you.

      Contact: Estioco, BSN 646 714 6270 estiocok@hss.edu

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  6. as a former Theater Major (BA, Theater Design), i’m fascinated by the idea of turning this into a performance piece…also living with CRPS for 12years….

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    1. I will forward your contact information to Caroline.

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  7. I would be happy to answer any questions you may have. I have had CRPS for more than 40 years.

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